Medical researchers into CJD and human risk from BSE

This is actually quite complex in that almost every medic in the UK knows a little about BSE. They also know that MAFF has been misleading (in the interest of public calm) concerning various other food 'scares'. For instance when it reached the press that listeria was to be found in cood-chill food ('peril in your TV dinner; Today Newspaper 1989) MAFF instantly denied it but the press simply went and asked the Public Health Laboratory Service and found out that it may well be true. Similarly when the salmonella-eggs story got out through Mrs Curry, it was denied immediately by MAFF but there was plenty of evidence that it was true from elsewhere. BSE was to be different. The information had to come from MAFF and so denials could not be bypassed. The medical profession, however, was not so easily led up a garden path and various groups (also, see Public Health) argued with MAFF data. Not the Dept of Health and not many of the groups abroad, who only received this data.

The subject should have reached the medical profession as soon as it became known in 1986. In fact it took a young doctor in central London and a physiotherapist to write a short piece to the BMJ for the medical profession to learn what was happening.

There is now not much that MAFF, DoH or SEAC (each of which have worked extremely hard and should be credited) can say against Dealler's statistics; they are entirely based on standard methods and MAFF data. There is not much that they can say against Lacey's logic; he takes a Public Health viewpoint, which is generally a worst-case scenario, and putting human life first. There is not a lot they can say against Helen Grant or Gareth Roberts; they take a logical line with published data. It only seems that insults can be made to prevent the media picking up stories from the sources of a different camp. I would ask that anyone contacting one of these groups is wary of this

There are more medical people involved in public heath

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Alperovitch A
INSERM U360,
Villejuif
France
Involved in CJD surveys with Will

Anderton, BH Professor
Neuoscience
Institute of Psychiatry
De Crespigny Park
Denmark Hill
London SE5 8AF

Askamit, Allen J Associate Professor of Neurology
Mayo clinic
200First St SW
Rochester
Minnesota 55905
USA
507 284 4037
fax 266 4752
Looked at any changes in 224 CJD patients over 1976-96.

Bell Dr.
Department of Neurology
Edinburgh Western General Infirmary
Edinburgh
UK
0131 332 2525 direct: 332 2117 or 0131 537 1955
Seems to be much more open to discussion of possible problems with BSE than any of the others at the CJD Unit.

Blundell Tom
Birkbeck College
Malet St
London
WC1E 7HX
MAFF
0171 631 6284
In charge of BBSRC money for BSE research

Borysiewicz LK Prof
Dept of medicine
University of Wales College of Medicine
Heath Park
Cardiff CF4 4XN
Also on the Committee that advises Swales at DofH on CJD research

Bridges, Les
Neuropathology
University of Leeds
1 Thoresby Place,
Leeds LS2 9JT
0113 233 3360 (direct)
He was involved with CJD histopathology and is known as being not on anyone's side

Cathala Francoise
68 Boulevarde St. Michel
75006 Paris,
France
The major French researcher at one time

Alan Colchester
Kent Institute of Medicine and Health Sciences
Canterbury CT2 7NT
01227 827200 A.Colchester@uk.ac.uk
His number at Guy's Hospital is 0171 955 4398
Senior Lecturer, was involved in the 5 cases of CJD apparently seen near to Ashford in Kent. It is still not clear why this number would appear so closely.

Collinge John
Prion Research Group
St. Mary's Hospital Medical School
Praed St.
London W2 UK
0171 723 1252 FAX 0171 706 7094
Was at Northwick Park

Davanipour Zorch
University of Southern California
Los Angeles
California USA
Was the original CJD epidemiologists working on the food that they ate

. Famulok Dr
Institut fur Biochemie der Ludwig-Maximillians
Universitat Munchen
Wurmtal Strasse 221, 81375,
Munchen,
Germany
0049 89 7401 - 7410

Finkenstaedt, Michael
Consultant Neuroradiologist
Neurologische Klinik und Polikllinik
Georg-August-Universitat Gottingen
Robert Koch Str 40
D 37075
Gottingen
Germany
0049 551 39 2266
fax 551 48 7263
LARIFI@aol.com
Looking into MRI and X-ray investigation of CJD

Grant Helen
10 Antrim Grove
London NW3 4XR
UK
0171 483 4065 (when on holiday 0862 810896)
Early investigator of the risks being taken by the UK Government concerning BSE

Hofman A
Erasmus University medical School
Rotterdam
The Netherlands
CJD Epidemiologist

Ironside James
Department of Neurology
Edinburgh Western General Infirmary
Edinburgh
UK
0131 332 2525 direct: 332 2117 or 537 3109
Came from Leeds, was determined that all is OK but recognised the cases of variant CJD and realised that this might represent BSE in humans

Jackson Mathew
Nottingham Medical School
Department of Neurology
Nottingham
UK
0115 9515151 or try 0115 9249924
Was the research registrar

Kingcot Ned
Department of Health
Skipton House
80 London Rd
London
SE1 6LW
UK
0171 9725355
may have changed. Used to just back up what SEAC had said blindly

Knight Dr
Neurology Department
Aberdeen University Medical School
Foresterhill,
Aberdeen
UK
Has written reviews on CJD and has now been transferred to the CJD Unit in Edinburgh

Kretzschmar HA
Institut fur Neuropathologie,
Univerisitat Gottingen
37070 Gottingen
Germany
0049 551 39 2700
Into many other things also

Lacey Richard
Microbiology Department
Chapel Allerton Hospital
Leeds 7
UK
0113 292 4654 mobile: 0378 960683

Lantos, Peter
Dept of Neuropathology
Institute of Psychiatry
De Crespigny Park
Denmark Hill
London SE5 8AF

Latto Douglas
British Safety Council
4 Derby Rd
Caversham
Reading
UK
01734 472282
Retiring but got a lot of info from USA

Lowe Jim
Nottingham Medical School
Department of Histopathology
Nottingham
NG7 2UH
UK
0115 9515151 or try 0115 9249924
Histopathologist

Makonnen Dr
Center for Disease Control
Atlanta
Georgia
USA USA USA
404 639 1050 ?

McGuigan Prof C
Welsh School of Pharmacy
University of Wales, Cardiff
Redwood Building
King Edward VII Ave
Cardiff CF1 3XF
Considering becoming involved with looking for methods of treatment

McLeod James
York area
UK
01904 413644
into kuru

Manuelidis Laura
Yale University School of Medicine Neurology Department
310 Cedar St
New Haven
Connetticut
USA 06510
203 785 4442
A determined woman involved with CJD research and animal models

Marsden CD
University Department of Neurology
National Hospital for Neurology and Neurosurgery
Queen Square
London WC1
UK

Masters Colin
Depatment of Pathology University of Melbourne,
Parkville Victoria
Australia 3052
Australia
61 3 347 5242 ?

Matthews Professor
Sandford House
Sandford on THames
Oxon
Ox4 4NY
UK
01865 771704 or 249891
was the man that taught Will

Mayer Professor
Nottingham Medical School
Department of Biochemistry and Cell Biology
Nottingham
NG7 2UH UK
0115 9515151 or try 0115 9249924
molecular biology

Mields W
Bundesgesundheitsamt (Federal Health Office)
Robert von Ostertag Institut
Berlin Germany
Germany

Minson Tony
Virology Department
Tennis Ct Rd
Cambridge
CB2 1QP UK
01223 336921
Working on PrP genes

Narang Harash
22-40 Brentwood Ave
Newcastle upon Tyne
NE2 3DA
UK
Home 0191 281 6622 Wk 281 5311 Fax 281 0611 Mobile 0831 444 104
Shows that asymtomatic animals are infected using electron microcrospy

Oxford Professor
London Hospital Virology Department
Turner Building
Whitechapel Rd
London E1 2AD
UK
0171 377 7000

Palmer Stephen
Abton House
Wedal Rd
Cardiff
CF4 3QX
01222 521997
Has been involved on behalf of the PHLS in the epidemiology of CJD

Patterson Dr.
Dean of the Medical School
University College London
Gower St
London WC1E 6BT
Now head of the Spongiform Encephalopathy Research Campaign instead of Tyrrell.

Pepys Mark Prof
Immunological Medicine Unit
Royal Postgraduate Med Sch
Hammersmith Hosp
Du Cane Rd
London W12 0NN
Involved in amyloid research, looking for therapeutic measures

Perry Hugh (now prof)
University of Oxford Neuropathogenesis Department
Oxford
UK
01865 271588
Into various research bits

Poser S
Neuroligische Klinik und Poliklinik Universitatklinikum
Goettingen
Robert Koch St 40
37075 Goettingen
Germany
Looks at CJD in Germany

Pullman Mark
Prion Research Group
St. Mary's Hospital Medical School
Praed St.
London W2
UK
0171 723 1252 FAX 0171 706 7094
Was at Northwick Park

Roberts Gareth
Director of Neuropathology Research
Smith Kline Beecham
The Pinnacles
Harlow
Essex
M19 5AO
UK
01279 622 350 FAX 622 555
Was at St. Mary's.
Stood up with Lacey originally to tell HMG that the risk was high

Rossiter Martin
Dementia Research Group National Neurological Institute
8-11 Queens Square
London WC1
UK
0171 3611 3853
has contacts

Salmon Roland
Abton House
Wedal Rd
Cardiff
CF4 3QX
01222 521997
Has been involved on behalf of the PHLS in the epidemiology of CJD

Scrimegeour EM (Martin)
Department of Medicine,
Sultan Qabos University
PO Box 35
Al-Khox 123
Muscat

Sellar, Robin
Western General Hospital
Crewe Rd
Edinburgh
EH4 2XU
0131 537 2021
fax 537 2579
Involved in MRI and other scanning investigation of CJD patients

Spillantini, Maria Grazia
MRC Centre for Brain Repair
University of Cambridge
Forvie Site
Robinson Way
Cambridge CB2 2PY

Stewart, Gillian
UK CJD Surveillance Unit
Western General Hospital
Crewe Rd
Edinburgh
EH4 2XU
0131 332 2117
Fax 343 1404
Took over from Martin Zeidler as the person that goes to see patients with nvCJD

Tyrrell David
Public Health Laboratory Service
Centre for Applied Microbiology and Research
Porton Down
Salisbury
Wilts
UK
01980 612 100 FAX 611384
Tyrrell Committee (he has now retired)

Vallat JM
Department of Neurology University
Hospital Limoges
France

Weiss Dr I
Institut fur Biochemie der Ludwig-Maximillians
Universitat Munchen Wurmtal Strasse 221, 81375,
Munchen,
Germany
0049 89 7401 - 7410

Wientjens DPWM
Erasmus Univeristy Medical School
Rotterdam
The Netherlands
CJD epidemiologist

Will Robert
Department of Neurology
Edinburgh Western General Infirmary
Edinburgh
UK
0131 332 2525 direct: 332 2117
Spongiform Encephalopathy Advisory Committee and neurologist in charge of the CJD Surveillance Unit

Wright Dr.
York
UK
01904 693322
Interested in BSE (has stopped eating beef). Was involved in kuru in PNG

Medical Officials in Government Offices

Alao, Nicky
MRC Head Office

20 Park Crescent
London W1N 4AL

Bryant, Margaret
MRC Head Office

20 Park Crescent
London W1N 4AL

Coriat Dr Anne Marie
MRC Head Office
20 Park Crescent
London W1N 4AL

Edwards Prof R,
Director of R and D,
The Welsh Office
Hallinans House
22 Newport Rd
Cardiff CF2 1DD

Grimble Sarah
MRC Head Office
20 Park Crescent
London W1N 4AL

Heppell, Lesley
BBSRC
Polaris House
North Star Ave
Swindon SN2 1UH

Jones, Tony
MRC Head Office
20 Park Crescent
London W1N 4AL

Lang Rob
Department of Health
Skipton House
80 London Rd
London
SE1 6LW
UK
0171 9725355
Involved in the organisation of research into CJD with the Medical Research Council

Lister Charles
Department of Health
Skipton House 80
London Rd
London SE1 6LW
UK
0171 9725361
may have changed (used to just back up Dr Wight despite the logical problems)

Madden P
Chief Scientists Office
The Scottish Office Home and Health Department
St. Andrew's House
Edinburgh EH1 3BE

McGinty Ailsa
Advisory Committee on Dangerous Pathogens
Skipton House
80 London Rd
London
SE1 6LW
UK
0171 972 5357
Dept of Health. Must be worried that the ACDP report on BSE does not agree with SEAC and that MAFF have decided to basically ignore it.

Rubery Eileen
Department of Health
Skipton House
80 London Rd
London SE1 6LW
Top person on the subject, makes decisions.

Skinner Dr.
Department of Health
Skipton House
80 London Rd
London SE1 6LW UK
0171 9725361
What may have happened is that the Dept of Health may have realised that it has been led up the garden path (with SEAC) by MAFF and he may have changed his views.

Wight Ailsa
Room 534B,
Skipton House
80 London Rd
London SE1 6LW
UK
0171 972 5357
Dept of Health was their rep at the SEAC. When I spoke to her she was unclear about a number of aspects of BSE.

Winfield, Nich
Department of Health
Skipton House
80 London Rd
London
SE1 6LW
UK
0171 972 5607/5623
Involved in the organisation of reserach from the Department of Health into blood transfusion risk from CJD

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